Go Buckeyes!!!

10/17/14

Not the football team ;)

We can pick between peanut butter and peanut flour. Rich is tired of the grape juice and peanut flour. Dr. Seidu asked me if I had ever heard of Buckeyes. The past decade, I have made Buckeyes out of Sunbutter for Christmas. Rich was interested in trying them with peanut butter. I didn't realize that I would have to make them by hand INDIVIDUALLY. I measured out a teaspoon of peanut butter for each dose and added in the butter, powdered sugar and dipped them in semi sweet chocolate. I decided to make the next 5 doses one by one and put them in the freezer.

He has enjoyed being able to go to the freezer and get his dose. We still sit with him for 2 hours, but he gets to control this part without me standing over him asking if there is any residue left in the cup.

http://wildeinthekitchen.blogspot.com/

Prilosec and a plastic bag

10/17/14

This is the email I sent to Dr. Seidu last Saturday morning:

"Rich feels fine. He dosed this week at .5 tsp. We are still doing peanut flour. He dosed on Tuesday and Thursday with no problems. As he was dosing on Thursday, he said he had thrown up in his mouth on Thursday morning in class. He had only had a boiled egg for breakfast so it wasn't much. He said he felt fine.

Last night he vomited all over his bed at 12:45 am. He had Chic fil a, which he has always eaten (fried chicken strips, sauce, some fries, root beer, ice cream and several servings of Twix candy). I realize this is a lot of grease and sugar. He has enjoyed getting to try new junk foods, and just got straight A's on his report card so we indulged him (mistake). When he woke me up, he said he still felt fine. 

Rich hasn't thrown up in around 8 years. He had reflux over 5 years ago until I took him off of cow's milk. He still eats cheese on pizza or Mexican food, but drinks mainly Almond Milk. 

He is supposed to updose this weekend to 1 tsp. I figure we should at least wait until Sunday to let his esophagus heal a little. I realize the two times he has thrown up are after way too much sugar and grease. After the reaction (sneezing and nose running last weekend), I will always make him dose with a banana and crackers instead of doughnuts. The banana and crackers have worked every other time. 

I realize there are two options right now:

• make sure if he eats unhealthy, greasy, sugary foods, he is only eating one serving

and/or

• put him on Prevacid or another med for reflux (he used Prevacid before - about 6 years ago)

I cannot say for certain that he didn't catch a virus at school, but throwing up a week apart is strange.

I hope you are having a great weekend! Thank you so much! We are so grateful to you for this opportunity!"

He updosed on Sunday and went to school Monday morning. When he got off the bus, he started throwing up. He threw up all evening. We gave him saltines and diet Ginger ale to help settle his stomach. Per Dr. Seidu, we started Rich on Prilosec. I am also giving him Zantac in the morning before school. On Tuesday, I sent him to school with a plastic bag in his pocket, emailed his teachers, and went into school to meet with the nurse and explain what was happening.

He has been fine all week until last night. He took his dose and an hour into his rest time threw up again. He did have frozen yogurt with a ton of sprinkles. We have to stop the sugar! After telling him "no" all of his life, it is so freeing to let him enjoy himself. 

Rough Week

Sunday October 5th

Rich dosed on Tuesday and Thursday this week. I have to confess, I have enjoyed watching him eat the foods that he has never tried. I don't want him to be unhealthy, but after living in fear for over 10 years of every holiday, restaurant, birthday and class party, every team and family get together, I am going to let us enjoy our freedom. He really likes M&Ms so I bought him a tube of minis at Walmart on Friday. He threw them up. He said he didn't feel bad and still felt fine afterwards.

Rich went to his first Bake Sale yesterday. It was a fundraiser for a little girl in our community who had a bone marrow transplant for a rare blood disease. There were items there with peanuts and peanut butter, but Rich was still able to pick out sugar cookies with icing and rice krispy treats. Something else I never would have let him do before.

Copied from
Juliette's Fight Team Facebook page 

Mike went and got doughnuts for breakfast. He ate a few munchkins and took his dose at 10am. We are planning on seeing Mike's parents today so we dosed instead of church. By 10:30, he started sneezing and his nose started running. With OIT, the rules about reactions are different. Personally, I do not give Benadryl with mild reactions, but we are supposed to with OIT. We gave him 4 children's fastmelts at 10:45 and put a trashcan beside him on the couch in case he got sick to his stomach. By 11:15 he was feeling better.

I am typing up an email to send to Dr. Seidu in the morning. I just want to keep him updated. I know if there was an emergency or if Rich threw up with the sneezing, I would have to Epi and call 911. Thank goodness we aren't there today :)

First Up-Dose

Sunday September 28

Rich had his shot on Thursday after school. We are to wait 3 days after his shot to up-dose.

Mike and I went to dinner with friends last night to Henry's Louisiana Kitchen. It was wonderful, but I had so much leftover I brought it home. Before OIT, I would never let Rich eat from a restaurant that he has never been to much less, one that I didn't grill the manager about what dishes had nuts and how they could make the food safe.

So for Rich's dose this morning, he had a pork chop, corn bread, potatoes and broccoli before up-dosing to .5 tsp of peanut flour.

He still can't taste the peanut flour in the grape juice so that is still working.